Achondroplasia Family Stories

Meet Jackson and his mom, Lisa

Jackson’s a snowboarder, swimmer, and advocate. His mom, a pediatric occupational therapist, was able to use her expertise to guide her search for answers. By following Jackson’s lead, his family helps him flex his muscles and crush misconceptions about the limits to what a child with achondroplasia can really do.

a child with achondroplasia enjoying time with his family on the sofa

a young boy affected by achondroplasia with his mom in the kitchen

Meet Jackson and his mom, Lisa

a boy with Achondroplasia sits on the couch with his siblings and mother

This is their family’s achondroplasia story

a boy with Achondroplasia, a type of dwarfism, throwing a football

Getting to the diagnosis

a boy with Achondroplasia posing in front of a swimming pool with a swim cap, bathing suit and goggles

What does Jackson’s care team look like?

a boy with dwarfism standing at an accessible kitchen counter

Adaptations

a boy with skeletal dysplasia sits on his fathers shoulders

Finding identity

a boy with Achondroplasia laying with his mother

Advice for parents

a girl with Achondroplasia laughing with her mom

Meet Raegan and her mom, Raechel

Raegan’s an in-charge fashionista who loves to laugh. Her mom was frustrated in the beginning about how to get answers. Through a community of friends and family, Raegan is able to express herself and show the world who a child with achondroplasia can really be.